11/12/15
– After a few delays, I finally had my DLI today. The plan is to wait 4 weeks
to have a follow up appointment being it typically takes 4-5 weeks to see any
impacts of the DLI. My next appointment is scheduled for December 10th.
If at that point there are no signs of GVHD, then another DLI will be
scheduled. If there are signs of GVHD, then the GVHD will be treated. Once GVHD
has successfully been treated then another DLI will be scheduled. This pretty
much an ongoing process that will be followed until my immune system and my
body come to terms with each other. It will probably take a long while before I
get there. In the meantime, the hope is that my agitated immune system will be
able to fight out any new MCL that comes its way. I sure know this is confusing
stuff. Dr. Rowley does the best he can to explain everything to my wife and I.
At the end of the day I have totally trust in him and his team.
Along
with our busy DLI Day, today we handed in all our paper work to the oncology
team to appeal denials from my insurance company (Aetna) and the drug company (Bristol-Myers
Squibb) for a PD-1 drug called Opdivo (nivolumab). Our hope is that I finally
get approved and that we add it to our arsenal of treatment options. We have certainly heard great things about this drug.
“For God shows no partiality.”
Romans 2:11
More to come…
http://mantlecell.blogspot.com/
3 comments:
I have been reading all your postings. Stay strong and keep fightin'! You are an inspiration to all of us who come across your blog. I am a little over half way through my chemo with MCL. My pet scan showed good results so far. Your blog inspired me to do my own blog. You can see the difference between my first pet scan before chemo and the mid chemo pet scan. There is also a facebook support group for MCL that I found that would appreciate your input. I have a link to it under "Links of Hope" that you can see. Hope you are feeling better today. I have heard good things about the team of doctors in Hackensack.
Best wishes,
Gene in Virginia
www.myfightagainstmantlecelllymphoma-blog-geneschenk.com I left out the "t" in "against" in the link above, sorry. Gene
Hi Gene, I am so happy that your scans are showing good results. Hi did look at your blog… well done with it. I started my bog to keep my friends and family aware of my progress. It is surprisingly read by many others. I am very thankful for this being it gives me the opportunity to meet people like yourself. I will certainly keep you in my prayers… that you continue to get good results. Best wishes and stay well. Rich
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