Friday, November 26, 2021

8 Years Since My SCT – Taking a Deep Dive into My Immune System

11/27/21 – I am celebrating another anniversary. It is 8 years since my Stem Cell Transplant. I find it lands at the perfect time each year. It always right around Thanksgiving and I truly have so much to be thankful for. I have two beautiful grandchildren; Millie is 2 years old and Calvin is 2 months old. I have two fantastic daughters; Jill and Alli and of course there is Sue, my wonderful wife of 37 years.

I am also very thankful to be in my longest stretch of good health since I was originally diagnosed back in 2008. I am pleased to say that it has been 5 ½ years since I have had any health issues of note.

If I was being nitpicky, I suppose I could point to me not having the best immune system. I do seem to get sick easily. There is not doubt if there is a germ in the room, it will find me… and when it does, I have a difficult time recovering. With this in mind, my friends at the John Theurer Cancer Center have referred me to a doctor who specializes in Allergies and Immunology. His name is Dr. Mohammad A Younus and I had my first appointment/consultation with him on November 1st. After looking at my case he had me go for a comprehensive blood test. This blood test would take a deeper dive into my immune system than anyone has done before. I have a follow up appointment on November 29th

Via the My Chart application I have had to chance to see some of the results from the blood test results. Some of my results of note (those that were either above or below normal values) include:

  • PNEUMOCOCCAL AB (23 SEROTYPES) – all 23 were Low
  • IGG – Low
  • Abs CD8 Suppressor – High
  • % CD4 (T Helper) – Low
  • % CD8 Pos Lymph – High
  • CD4/CD8 Ratio – Low
  • Platelet Count – Low

The CD4 and CD8 are areas I do not believe have been tested for in the past. It will certainly be very interesting to see what Dr. Younus will have to say about them. I have heard great things about Dr. Younus. I am truly very hopeful of what he can do for me.

With all this said, even if Dr Younus can’t help me, I am just so thankful and blessed. In all honesty my health challenges are becoming a distant memory. The one thing from my adventures with mantle cell lymphoma that I will always carry with me is that everyday is a gift.

With us entering the season of Advent here is a YouTube link to my favorite version of “O Come, O Come Emmanuel”. It’s performed by Third Day. Enjoy!

 https://www.youtube.com/watch?v=x7igzA8uupU

A voice of one crying out: Prepare the way of the Lord in the wilderness; make a straight highway for our God in the desert. Every valley will be lifted up, and every mountain and hill will be leveled; the uneven ground will become smooth and the rough places, a plain. And the glory of the Lord will appear, and all humanity together will see it, for the mouth of the Lord has spoken. 

Isaiah 40:3-5

More to come…

http://mantlecell.blogspot.com

Friday, July 16, 2021

A Happy 13 Year Anniversary

 07/17/21 – It is 13 years since I was first diagnosed and all I can say is life’s been great for me.  Back in 2008 I was 47 years old, unsure of what the future held for me. This year, in 2021, I celebrated my 60th birthday and my future is looking very bright.

At my last appointment, my favorite APN Melissa said “you could now consider your check ups as social visits”. I will happily admit that my health has been nothing but excellent. On top of this I was able to emerge from the COVID-19 pandemic unscathed.

Other than that, my family life has been fantastic. I just had the wonderful opportunity to spend a week with my family and granddaughter. To add to our blessings my daughter is expecting her second child in September.

As I say this, it makes me think about the many people who have not faired as well as I have. At times I do experience feelings of survivor’s guilt or even remorse. I just do not know why God chosen me to recover so well while other still suffer and others have not survived. It is a mystery of life I will never understand. I will always keep the people in my heart who are no longer with us. At the same time, I will never stop celebrating the wonderful gifts of life, survival and good health that God has given to me. I must always remember and be thankful for this gift and never stop trying to make a difference with the time I have been given.

 So, today is July 17th, the 13th anniversary of the day I was first diagnosed with MCL. Me and my family choose to celebrate this day. It is a day that reminds us of how fragile we all are and that every moment we have is a gift from God.  

 

 Me and my wife enjoying the beach in Wildwood, N.J. (July 2021)

 

Here is a link to a wonderful song about celebrating life call “Rattle!” by Zach Williams

https://www.youtube.com/watch?v=GeTs6s19xX0

 Jesus said to her, “I am the resurrection and the life. Whoever believes in me, though he die, yet shall he live

John 11:25

 

More to come…

http://mantlecell.blogspot.com/