1/28/16 – I continue to be at the John Theurer Cancer Center to
treat my ITP and low platelets. My day can include me getting platelets (HLA or
cross matched), IVIG, Rituxan, NPlate, etc…
Yesterday was one of those days. The day started with my
platelets at 6. I received IVIG, and two bags of HLA platelets. The day ended
with my platelets at 58. Woohoo!!!!
The hope now is that they stick.
I will head back to the cancer center on Friday, January 29th
for a similar treatment where I will get IVIG, platelets (cross matched) and an
NPlate shot.
I would really love to get to the point where we know what is
causing ITP in me… what works best in treating it and what’s not working. This
of course requires patience on my part being we are going through a process of
elimination.
We did find out that my stool sample came back negative for H.
pylori. It is clear that it is not the cause of the ITP. In addition I can
resume taking Penicillin V potassium, Bactrim and Livalo. They were not found
to be a cause either. On top of that I am being weaned off the prednisone being
it wasn’t helping with the ITP.
Next week should prove to be very informative. I’ll get my third
Rituxan treatment. It seems that with treatment we should be able to tell if
the Rituxan is working.
From the perspective of keeping the eye on the Mantle Cell
Lymphoma ball, I will have a PET Scan on Friday, February 5th. This ITP issue has caused a setback but the
fight against MCL still needs to be in the forefront. Being in remission and
keeping it from coming back is my top priority. I am very much looking forward
to be able to begin with the PD-1 (Opdivo) treatments… but I need to be
patient.
Be still before the Lord and wait patiently for him; fret not
yourself over the one who prospers in his way, over the man who carries out
evil devices! Refrain from anger, and forsake wrath! Fret not yourself; it
tends only to evil. For the evildoers shall be cut off, but those who wait for
the Lord shall inherit the land.
Psalm 37:7-9
More
to come…
http://mantlecell.blogspot.com/
http://mantlecell.blogspot.com/
2 comments:
We continue to pray for your recovery. You have been an inspiration to me and my wife. We know the battle with allo is tough. She is now at day+16. Her counts are just starting to recover from bottom. On Monday they plan to release her from the hospital and move her to out patient status with a trip every other day back to the clinic.
I pray that God watches over you and my wife in this battle against MCL.
Hey Charles, Thank you again for your prayers. Day 16... This is a time where patience is very important. Sometimes our bodies recover a little slower than we would like, but know that your wife will be fine. I am sure you are both looking forward to get her home from the hospital. Even with the many trips back to the hospital it is so great to sleep in your own bed. I continue to keep you and your wife in my prayers. Rich
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